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Massachusetts Health Policy Forum: Accessing the Continuum of Care for Severe Acquired
Brain Injuries in Massachusetts – issue brief.
  **
 


The issue brief prepared for this health policy forum evaluates the state of the continuum of care for severe acquired brain injuries in the Commonwealth by describing the stages of the continuum of care, from access to emergency and acute rehabilitation care, to post-acute care and community services and supports. Gaps and disparities in access across the continuum as well as areas of strength will be described. Brain injury costs and how those costs are spent will be examined. Best policy and practice examples from across the country will be described. Findings and recommendations are informed by insights from interviews with brain injury stakeholders, the research literature, and published reports. The forum took place on December 10, 2015, 8:30 to 12:30 at the Omni Parker House in Boston. Laura is first author on this issue brief for the Massachusetts Health Policy Forum, Heller School, Brandeis University.

     

The Massachusetts Health Policy Forum was created in 1998 to bring public and private health care leaders together to engage in focused discussion on critical health policy challenges facing the Commonwealth of Massachusetts. Modeled after the successful National Health Policy Forum of George Washington University, the Massachusetts Forum conducts approximately four forums per year for an invited audience of health care leaders and legislators. For more information about this forum Severe Brain Injury in Massachusetts: Assessing the Continuum of Care please click
here.

View the Agenda - List of Speakers, Panelists, Moderators, etc
  (PDF) 45 Kilobytes

Read the **Issue Brief  'Severe Brain Injury in Massachusetts: Assessing the Continuum of Care'. - Presented at the Health Policy Forum Dec 10th 2015 here. (PDF) 866 Kilobytes  62-Pages

* Presentation - Reviewing the Research PowerPoint (PDF) 282 Kilobytes  23-Pages

Video:

  View this impactful video shown at the beginning of the Massachusetts Health Policy Forum. A video testimony from Acquired Brain Injury (ABI) Survivors for "Severe Brain Injury in Massachusetts Accessing the Continuum of Care" a Massachusetts Health Policy Forum Dec 10, 2015, Boston MA.  Click here or on the thumbnail (image) to the left to view the video.   Video (8:57 min)

*    CBS WBZ 1030AM News Radio's Diane Stern and Mary Blake interview Dr Laura Lorenz about severe acquired brain injuries in Massachusetts before the Massachusetts Health Policy Forum.
 WBZ News Radio Diane Stern (Interview 1)
 WBZ News Radio Diane Stern (Interview 2


 Mass Health Policy Forum (Forum Article) Dec 10th 2015

                

Our thanks for the support and funding from our sponsors: The Massachusetts Brain Injury Association (BIA-MA), Supportive Living Inc (SLI), and Brandeis Massachusetts Health Policy Forum (MHPF) and it's staff, our associate sponsors: Advocates, The Massachusetts Rehabilitation Commission (MRC), and Fairlawn Rehabilitation Hospital. Thank you to BlueCross and Blue Shield foundation sustaining funder of the Massachusetts Health Policy Forum (MHPF). To our speakers Dr Doug Katz and Dr Laura Lorenz, the esteemed team of panelists and moderators (see Agenda for details). To the brain injury survivors, caregivers, healthcare professionals, and all those in attendance.

For more information or questions about this project contact Laura by emailing her at laura@lslorenz.com, or use our Online Contact form (here). Please include "Re: Massachusetts Health Policy Forum on the continuum of care for severe acquired brain injuries in Massachusetts – issue brief" in the subject.
 

 
 
 
 

 Transitional life experiences of the long-term brain injury survivor

This study provided a group of chronic brain injury survivors the opportunity to share their insights and experience of residential transition and to suggest strategies to help maximize the transition experience and outcomes. The study used a qualitative design that consisted of semi-structured interviews with 21 adults with chronic ABI residing in community-based group homes. The insights and suggestions shared add to existing knowledge of post-injury residential transitions and strategies that professional caregivers may use to maximize the ease and success of the survivor’s transitional experience. A peer-review paper has been accepted for publication. Laura is PI on this Supportive Living Inc study.

For more information or questions about this project contact Laura by emailing her at laura@lslorenz.com, or use our Online Contact form (here). Please include "Re: Transitional life experiences of the long-term brain injury survivor" in the subject.
 

 
 
 
 


 A pilot study of effects of a program of intense exercise for adults with chronic acquired brain injury on their physical fitness, participation, and self-efficacy

This pilot study investigated the effects of high-intensity group exercise on the endurance, advanced mobility, and gait speed of 14 adults with chronic moderate to severe acquired brain injury. The intervention was a 6-week high-intensity exercise group for 60-90 minutes, 3 days per week assisted by personal trainers under physical therapist supervision. Significant post-intervention group improvements were achieved on all three outcome measures (6MWT, HiMAT, 10 MWT). Findings have been applied to program expansion. A peer-review paper is under review. Laura is co-investigator on this Supportive Living Inc study.
 
For more information or questions about this research project contact Laura by emailing her at laura@lslorenz.com, or use our Online Contact form (here). Please include "Re: A pilot study of effects of a program of intense exercise for adults with chronic acquired brain injury on their physical fitness, participation, and self-efficacy" in the subject.

Click here to see a video of the exercise program in action
   Video (4:51 min)

 
 

 
 
 
 


Supports and barriers to exercise for adults with chronic acquired brain injury in community living

The overarching goal of this study is to inform an intervention to strengthen supports and address barriers to exercise participation by community-based group home residents with disabilities from severe brain injury. This qualitative study used a brief survey and a semi-structured interview guide with exercise study participants, group home managers, personal trainers, and family members. Data analysis is ongoing. Laura is PI on this Supportive Living Inc study.

For more information or questions about this project contact Laura by emailing her at laura@lslorenz.com, or use our Online Contact form (here). Please include "Re: Supports and barriers to exercise for adults with chronic acquired brain injury in community living" in the subject.
 

 
 
 
 


Talking with pictures: A photovoice project to inform community integration of older adults with brain injury

Talking with Pictures was a participatory research project that looked at community integration of older adults with brain injury and other neurological conditions in Lexington, MA. The method was PhotoVoice, which uses photographs and captions to understand lives, experience, and community. Participants met 12 times to discuss the research topic and their photos, write captions, and prepare an exhibit of 15 posters with photos, captions, and insights. Three student interns from Boston University and Brandeis University helped facilitate study sessions. Data analysis is ongoing. Laura is PI on this Supportive Living Inc study. This project was supported by a grant from the Dana Home Foundation... (read more)

Click here to view for more detailed information about this project on the Photovoice - Projects Page.

For more information or questions about this project contact Laura by emailing her at laura@lslorenz.com, or use our Online Contact form (here). Please include "Re: Talking with pictures: A photovoice project to inform community integration of older adults with brain injury" in the subject.
 

 
 
 
 


A pilot study of cost-effectiveness of residential services and supports for adults with chronic ABI

The purpose of this study is to gain an understanding of health-related quality of life outcomes and the cost-effectiveness of residential services and supports provided for adults with chronic moderate to severe acquired brain injury in supported community-based group homes in eastern Massachusetts. The study has three components: HR-QOL outcomes measured from resident and staff perspectives, the economic value of these outcomes, and cost-effectiveness of the services provided. Data analysis is ongoing. Laura is PI on this Supportive Living Inc study. Three Brandeis University graduate students are working with Laura on this project.
 

For more information or questions about this project contact Laura by emailing her at laura@lslorenz.com, or use our Online Contact form (here). Please include "Re: A pilot study of cost-effectiveness of residential services and supports for adults with chronic ABI" in the subject.
 

 
 
 
 


Supporting relational care in independent living for long-term brain injury

This exploratory mixed methods study seeks to understand relational coordination and job satisfaction among front-line staff providing direct care for adults with chronic acquired brain injuries living in supported community-based group homes. Aims of this quality improvement project are to increase staff retention, improve staff job satisfaction, improve relational coordination among staff and between staff and administration, and determine ways to support resident-staff interactions. Laura is co-PI on this Supportive Living Inc and Advocates study.

To learn more about Relational Coordination visit:
Relational Coordination Research Collaborative, and Relational Coordination Analytics here.

For more information or questions about this project contact Laura by emailing her at laura@lslorenz.com, or use our Online Contact form (here). Please include "Re: Supporting relational care in independent living for long-term brain injury" in the subject.
 

 
 
 
 


A mixed methods evaluation of the New England Aids Education and Training Center’s clinical education and training program
 

This mixed methods study used semi-structured interviews, conducted by phone and in person with 30 HIV providers in Massachusetts and an iterative analysis process of coding for pre-identified and emerging themes. Data on the trainings offered, their levels and modalities, and the participants and disciplines were also collected. Findings indicate that New England AIDS Education and Training Center (NEAETC) training programs have helped providers to bridge the Know-Do Gap between knowledge and translation to practice but caution is advised. A peer-review paper is under development. Laura is co-investigator on this NEAETC study

New England AIDS Education and Training Center (NEAETC) - Crossing the Know-Do Gap.  Video Run Time (29:28 Min)   

Presentation - (PDF) 1.263 Megabytes

For more information or questions about this project contact Laura by emailing her at laura@lslorenz.com, or use our Online Contact form (here). Please include "Re: A mixed methods evaluation of the New England Aids Education and Training Center’s clinical education and training program" in the subject.
 

 
     

 


P.A.R



Photovoice Projects:

 


Girls Inc Global Ambassadors Project  -  Brain Injury  X-Posed  -  Mdantsane Township Africa  -  Girls Inc Lowell,Ma  -  SLI Brain Injury Wellness Center- Lexington,Ma
Mill Girls of Lowell Photovoice Project Then & Now Girls Inc Lowell,Ma


What is Photovoice? Photovoice is a participatory research and critical thinking method that allows patients and community members to share their experiences and collaborate for change. Using photographs can illuminate barriers to access, illustrate quality of care, and influence policy and resource decision making in respectful and supportive ways. It can help unite service providers and patients through visual accounts to understand and to address health care issues as a shared endeavor. It is an innovative technique of interest to community members, graduate students, policy makers, professionals, and more..

History: Photovoice was developed by developed by Caroline C. Wang of the University of Michigan, and Mary Ann Burris, research associate of the School of Oriental and African Studies (SOAS) at the University of London. In 1992, Wang and Burris created what is now known as "Photovoice" as a way to enable rural women of Yunnan Province, China, to influence the policies and programs that affected them. It has since been used among homeless adults in Ann Arbor, Michigan and among community health workers and teachers in rural South Africa and by Dr. Claudia Mitchell et al., and with girls, Township youth, and brain injury survivors with Dr. Laura S. Lorenz. The concept owes a debt to the Paulo Freire's pedagogy related to critical consciousness, feminist theory and empowerment. Perhaps the best of description of the history of Photovoice is to start here Photovoice from Wikipedia.

Workshops/Lectures/Talks: Laura offers Photovoice Workshops on the Photovoice method and organizing and managing your Photovoice project. Workshop participants have included educators, facilitators, service providers, researchers, development workers, and others seeking to gain conceptual and hands-on experience with this dynamic community assessment and reflection method. Workshops are tailored to meet audience needs. Participants leave ready to design and implement a project in their local context. A CD of conceptual and practical materials for applying Photovoice and managing project logistics and outreach is provided.

Copyright LSLORENZ.com Photovoice Projects Samples


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  tm - lslorenz.com
Mill Girls of Lowell Photovoice Project - Then and Now  Synopsis


"Through funding provided by the Mass Humanities Grant, Girls Inc. is pleased to be able to implement the Mills Girls of Lowell Project. The Photovoice program puts cameras in the ands of girls 10 and older and enables them to write narratives about their communities. The focus of their work was "The history of Lowell Mills girls, then and now" Since the majority of the girls that attend our programs have grown up in Lowell, we educated them on how the Mill girls lived and how theoretically this has impacted the quality of their lives today, all while learning about a very important part of Lowell history... (read more)

Click here to view for more detailed information about this project on the Photovoice - Projects Page.
 


 tm - lslorenz.com Supportive Living PhotoVoice Project: “Talking with Pictures: Community Integration  of Older Adults with Brain Injury"  - Synopsis

"Talking with Pictures" is a participatory research project that looks with fresh eyes at community integration of older adults with brain injury and other neurological conditions in Lexington, MA. Our method is Photovoice, which uses photographs and captions to understand lives, experience, and community... (read more)

Click here to view for more detailed and pictures information about this project on the Photovoice - Projects Page.
 



tm - lslorenz.com Girls Inc. Photovoice: Global Ambassadors Project  (January - December 2011)  - Synopsis


Girls Inc. Photovoice: Cultural Ambassadors Project (CAP) builds on Girls Inc.’s 10 years of experience with photovoice, an after-school program that puts cameras in the hands of adolescent girls so they can take photographs of community resources and problems and share them with each other and with people who make decisions, and expands photovoice to encompass an investigation of culture and strengthen the research skill-building aspect of photovoice. Photovoice: CAP aims to enhance girls’ understanding of culture in a global sense: how culture shapes behavior, beliefs, and sensibilities; appreciation for diverse beliefs, appearances, and lifestyles; and comprehension of ways in which culture can be a tool for positive change... (read more)

Click here to view for more detailed information and pictures about this project on the Photovoice - Projects Page.
 



 

tm - lslorenz.com
Brain Injury X-Posed: The Survivor's View  (September 2006 - Present)  - Synopsis


Laura co-facilitated a Participatory Action Research (PAR) wiki project using photovoice with eight members of the 'Mild’ Brain Injury Survivor Support Group in Framingham, MA. and two brain injury survivor co-facilitators (Barbara W. and Laura F.), with support from the Brain Injury Association of Massachusetts BIA-MA and the Massachusetts State-Wide Head Injury Program. Action research in the tradition of Kurt Lewin involves scholar-practitioners integrating science and practice in a dynamic group and organizational setting... (read more)

Click here to view for more detailed information and pictures about this project on the Photovoice - Projects Page.

Brain Injury X-Posed: The Survivor’s View  

"The exhibit is a moving glimpse of how individuals with brain injury deal with this major change and move on with life," said Laura Lorenz, Ph.D., Brandeis University, who brought this Photovoice project to the Brain Injury Association of Massachusetts. The project and exhibit eventually went on to be recognized by Brainline.org, WETA TV , PBS, and DVBIC.... (read more)

Click here to view for more detailed information about that portion of the project on the Photovoice - Projects Page.

Update:
Brain Injury X-Posed: The Survivor’s View (PhotoVoice II)

Members of the "Amazing" Brain Injury Survivor Support Group in Framingham, Massachusetts embarked on a 2nd PhotoVoice Project entitled (Brain Injury X-Posed: The Survivor’s View PhotoVoice II). The exhibit was prepared by the participants and facilitators over eight-weeks and took place from September through December 2009. The exhibit contains 48 photographs and narratives, grouped in eight categories... (read more)

Click here to view for more detailed information about that portion of the project on the Photovoice - Projects Page.
 


tm - lslorenz.com Photovoice in Mdantsane Township, South Africa: “Pictures that Talk”  (November - December 2001) - Synopsis

With funding from the EQUITY Project of the Government of South Africa and the US Agency for International Development, Laura facilitated a photovoice project with 16 youth, brought together through a local Mdantsane Township organization called the Youth Academy. The initiative provided an opportunity for youth to have a voice in their township as they took photographs and wrote essays about local issues, and developed an exhibit to inform local policy makers, including community groups, community volunteers, social workers, teachers, and government agencies... (read more)

Click here to view for more detailed information and pictures about this project on the Photovoice - Projects Page.
 


tm - lslorenz.com Photovoice with Girls Incorporated of Greater Lowell   (January - June 2001) - Synopsis

As part of an independent study while pursuing a Master of Education in Instructional Design at the University of Massachusetts Boston, Laura designed and led a pilot photovoice project with five girls aged 11 to 17 years through Girls Incorporated of Greater Lowell. The participating girls took photographs of their community—both its positive and negative aspects—and shared their point of view through exhibits at Lowell City Hall, Pollard Memorial Library, the Brush Gallery, and Middlesex Community College. The decision makers they reached included family, friends, neighbors, peers, teachers, community leaders, foundations, and elected officials.

The pilot project won a national Girls Inc Program Award in 2001, and in 2002 Girls Inc of Greater Lowell applied for and won a Strengthening Families Program grant, funded by the Annie E. Casey Foundation, to develop a photovoice curriculum guide. The Photovoice: Girls Vision, Girls Voices curriculum is now a national Girls Inc program, and Girls Inc affiliates throughout the US and Canada carry out numerous photovoice projects each year. Girls Inc of Greater Lowell continues to lead photovoice projects and share the methodology with other Lowell youth through outreach programs at local middle schools... (read more)

Click here to view for more detailed information and pictures about this project on the Photovoice - Projects Page.

 


*Note: For more information on any of the projects listed above please visit the Photovoice Projects and Exhibits page here. For more information on Lectures or Workshops on Photovoice please visit the Lectures and Workshops page here.
 

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